Welcome

Hello There

I am a global health advocate, registered nurse, and the founder of several initiatives dedicated to raising awareness about sickle cell disease (SCD). My advocacy journey began in 2009 when my daughter was diagnosed with SCD at just 14 months old. That life-changing moment shifted my path entirely, prompting me to leave a career in business and pursue nursing so I could better understand and support her condition.

I Co-founded Australian Sickle Cell Advocacy Inc. (ASCA), an organisation created to support individuals and families affected by SCD

Professionally, I’ve worked as a registered nurse and data analyst within the aged care sector. I also serve as the Managing Director of Unique Living Options, an organization dedicated to helping individuals live fulfilling, independent lives in their own homes.

Alongside my healthcare and advocacy work, I am also an author and publisher. I wrote So I Have Sickle Cell Disease, a children’s book designed to educate and empower young readers living with the condition. I’ve also published and co-authored two books featuring over 25 contributors each—people who share their personal stories of life with SCD and its impact on them and their families.

My work has been featured in various media outlets, and I’ve had the honor of sharing my journey and insights through interviews, speaking engagements, and global health forums.

Through all these efforts, I remain deeply committed to creating lasting change and improving the lives of those affected by sickle cell disease—both in Australia and around the world.

Purchase my Children's Book

So I have Sickle Cell Disease is a children’s book dedicated to all children impacted by sickle cell disease. Olana is a twelve-year-old girl who has just been cured from sickle cell disease, a blood disorder that affects the red blood cell. Twelve years ago, Olana was born with sickle cell disease.

After multiple complications with disease, she was finally cure from sickle cell disease through a bone marrow transplant. This news was celebrated by her whole extended family.

This book is in both English and Arabic, watch this space for the publishing date for the Arabic version.

Get yourself an English copy here. 

Purchase Children's Book

Get care in your own Home at Unique Living Options

Unique Living Options is a registered company providing home care services including Nursing services, personal care, cleaning services, garden management, transportation and shopping and meals preparations. We provide these services to children 7 years old to adults up to 65 years of age.

Be comfortable in your own home knowing that we will assist all areas of your care needs. Call on us today, we are here to help you in all your unique options. 

Phone: +61414 309 995

Email: olanasworld@gmail.com 

hello@agnesnsofwa.com.au

Address: Melbourne Australia