Product Description

Caring for children living with Sickle Cell Disease – A Mother’s Perceptive gives an extensive approach to managing children living with Sickle Cell Disease (SCD) from a caregiver’s point of view. The book elaborates on the process we went through as a family to deal with the effects of being impacted by SCD. I discuss the basics of SCD, susceptibility, symptoms, complications, treatment options, and curative therapies. As a caregiver, I talk about what worked for us as a family in our journey. I discuss the mental aspect of the family and how we dealt with this. I give tips to parents on stress management and managing the whole person, not just SCD. I also give an insight into what you should be aware of in understanding your child’s illness, what questions to ask the doctors, being your own advocate, and advocating for others. Finally, I give tips on the basic understanding of routine tests and what to do when alarm bells go off. Being a global SCD advocate, I also share some sickle cell organisations supporting people impacted by SCD in different countries. I hope you find this book helpful. Contact me with any questions.